Totino's Pizza Rolls and Redbox Giveaway
You all know how often our family is home together and has time to relax. Just about never. So when we are all home and no one is at the hospital and everyone is feeling good, the last thing I want to...
View ArticleThe Tostinos/redbox winner is ...
The Enriquez Family!! Sorry I don't have a picture of Jacob drawing the name from a pink hospital wash bin but my camera is missing. :( Anyway, congratulations to the Enriquez Family! Please email your...
View ArticleThankful for Thanksgiving
We are home now, and so thankful to be here! The good days more than make up for the not-so-good days. Emily is sleeping a lot lately, but when she's awake she's happy. She is always in and out and in...
View ArticleGetting ready for the holidays and cleaning house
I am trying to take advantage of Emily being home from the hospital to get our house cleaned up. It is absolutely embarassing what it looks like right now. We had some friends over last weekend (hi...
View ArticleIt's almost Christmas!
It is hard to believe that it is almost Christmas. It seems like this entire year just disappeared. It doesn't help that we spent the majority of it in the hospital, I suppose. Emily is doing well. She...
View ArticleChristmas in the Big House
No, I didn't get arrested before Christmas. ;) Emily was admitted to the hospital the Monday before Christmas. She had another blood infection caused by a bacteria translocation from her gut....
View ArticleWe made the decision ...
Emily was discharged from the hospital last Thursday late at night, after a 16 day stay and antibiotic treatment for a line infection. She gets line infections because her motility is horrible, and...
View ArticleDoing well at home!
Emily had trach surgery on January 19th. She was discharged directly from the PICU on January 27th, the day before my birthday! What a great birthday present. She did great during the trach surgery,...
View ArticleAnother week, another ER trip
Emily earned herself a trip to the ER yesterday, after a long 4 days of trying to avoid it. On Friday, she had a bronchospasm that lasted three hours. It was horrible, but she was managing to maintain...
View ArticleBad blogger .... bad blogger!
I just typed an entire long update and then my computer ate it. :( The short version is that Emily is home right now on IV antibiotics for a urinary infection. We should know later today whether we can...
View ArticleWaiting for more surgery
Emily is inpatient again. She had the UTI last week, and the antibiotic they had called in was not the right one. By the time the sensitivities came back, she had landed herself in the ER again. She...
View ArticleRough days
Emily has had two very rough days in a row. Emily has had a ton of coughing/gagging episodes that go on and on for hours. We have tried all her PRN meds and nothing helps. The only thing that helps a...
View ArticleDay by day (and stupid blog problems)
Things here change daily, and even sometimes ultiple times a day. Keeping Emily calm and comfortable is proving hard to do. She ended up having a reaction to morphine, which we thought might happen. We...
View ArticleIt's tough to type this update ....
Emily is home from the hospital, and we are here to stay. She has appointments with three of her doctors on Wednesday, and I have a phone call in to her hospice team. We are making the switch...
View ArticleWeekend pictures
(Me and my girl) We went to my Grandma's house yesterday. We took lunch and an Easter basket, and had a good time. Emily slept most of the time, like she does daily now, but she did wake up a bit to...
View ArticleWaiting, cuddling, crying, loving
That is what we are doing right now. Emily's fluids have been turned off and she is getting a lot of medications to keep her comfortable. All we can do now is wait, cuddle, cry, and love. And we are...
View ArticleOctober 16, 2003 to April 16, 2012
This is the post I have never, ever wanted to write. Thank you all for loving my Peanut.
View ArticleThree weeks ....
I can't believe it's been three weeks since our sweet princess passed away. It feels like a million years since I last snuggled with her or touched her little face. If this is how horrible three...
View ArticleAdjusting?
How are you supposed to get used to this new way of life? Being Emily's mommy is what I am. It's what I have been for the last 8.5 years. Yes I am Alex's wife, and Jacob's mom. But those things are...
View ArticleHow it happened
Many people have asked me about Emily's last week, days, hours, minutes ... and I haven't been able to tell almost anyone. This weekend, a very close and dear friend of mine (Hi Carol!) asked me and...
View ArticleTwo months without our Princess ...
It feels like forever. It feels like just yesterday. It feels like a nightmare. It feels like hell. We are having a HUGE garage sale tomorrow, to raise money for Emily's headstone. We need to...
View ArticleAs it is
This new stage of our lives is difficult. Trying to continue on with life, attempting to smile when all we want to do is cry. Figuring out the answer when people ask "How are you" or the even more...
View ArticleAlmost a year ....
How is it possible that we have lived almost a YEAR without our Princess? I don't know if anyone even has my blog on their readers anymore, so maybe no one will see this. I am thinking of starting to...
View ArticleBlogging through grief perhaps?
I really think I need to start blogging again. It was always SUCH a release, and although I am on Facebook all the time now, it's not the same. Getting to just sit and type out whatever is in my...
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